Children with SMA type 1 treated in infancy with Zolgensma alone showed motor and lung/bulbar muscle gains over two years of ...

With this extension, the SMA treatment Evrysdi is available for patients of all ages in Japan, from presymptomatic newborns ...

Making a move, columnist Ari Anderson finds, can bring advantages but also complications that must be resolved.

Columnist Helen Baldwin describes the period around her late son Jeffrey's difficult diagnosis and the concept of "ignorant ...

Untreated patients with spinal muscular atrophy (SMA) type 2 showed more changes in their ability to perform upper limb activities over a year than those with SMA type 3, an analysis suggests. Whether ...

Elephants have long been my favorite animal. I even have a collection of items depicting them. I’m captivated by the majestic giants whose eyes seem to convey vast wisdom and an array of relatable ...

Brianna Albers (she/her) is a crip-cyborg storyteller living in Minneapolis-St. Paul. She was diagnosed with spinal muscular atrophy type 2 in 1996 and lives with co-occurring physical and mental ...